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Degenerative Myelopathy

10338 Views 18 Replies 12 Participants Last post by  LeAnn
My 10.5y female GSD was just diagnosed with Degenerataive Myelopathy. I have been reading quite a bit on it, but most of what's out there is the same basic medical information. What I can't find is personal experiences. If you have dealt with this, what is the progression of the disease, time frame, what helps and what doesn't etc. I would appreciate any in put. I am much more concerned with quality, not quantity of time right now.
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My personal experience is that i had a shep who got it at 8yrs old by the age of 9yrs i was ready to put her down her walking was horrible , her backend would NOT co operate and was very wobbly .i stopped taking her on walks ,
I did alot of research and talked to my dogs chiropracter about it , she talked about a diet change that she has heard sucess with diet change,
I looked it up , i ended up putting her on Urban WOLF homeade diet, ( this was in the fall) , she had no walks all winter, and by the spring she seemed back to almost normal , I started her up with leash walks and even tually bush walks with my pack , she did great,
she was never perfect but not bad either, we did alot of swimming,
AND she lived to 14yrs old!!!
all i did was change diet , and she saw the chiro monthly ,
i have talked to a friend who has a rottie with it , she just changed diet to raw, dog is doing incredible
what do you feed?
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I feed Royal Canine. What is in the Urban Wolf diet.
Kate, my first Thunder (GSD/Dane) got it in his 9th yr. With him he progressed fast. Just a couple of months from first walking on his back knuckles till we had to put him down.
Fortunately for him, the vet said there was no pain involved.
This was 20+ yrs ago. Hopefully they have made advancements.
Give Anna a hug for me! She's been a fighter.
Kate, my first Sch 3 Jesse was diagnosed with caudal equina and then a couple months later with degenerative myelopathy. For him, it progressed really quickly and he went from a sch 3 in May to pretty lame but happy in Nov to not walking in Dec. I noticed a huge loss in function after the vet gave him rabies and distemper vaccines in Nov and I could kick myself for allowing that. I didn't feed raw at the time. I gave him monthly chiro appointments but what really hindered him (and me) was being incontinent and huge (he was 95 pounds and not fat).
Recently a client with a gsd reported really good results with swim therapy. She credited it with keeping muscle tone and allowing her dog better quality of life later on.
Good luck.
I know this sounds silly, but are you sure it is DM? I see so many people on message boards saying their dog was diagnosed with DM, but often it is just from a vet's observation rather than going through actual testing. One of my dogs had the symptoms of DM and when I brought her to a neurologist and had an MRI done, it was actually degenerating discs that were causing her problem, not DM. The neurologist told me that very few dogs that people think have DM actually do. He said that DM moves very quickly and the dogs die within a few months. Dogs with other problems like degenerating discs will live much longer. The treatments for DM and other problems are very different, so it is important that the proper testing is done to make sure what the dog has. As Bob said, dogs with DM don't feel pain, but dogs with other issues will, so you need to know what you are dealing with so the dog will not suffer unnecessarily.
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Jeanne said;
"dogs with DM don't feel pain, but dogs with other issues will, so you need to know what you are dealing with so the dog will not suffer unnecessarily."

One of the test done on my dog was testing for pain in the back legs. Feet and toes in particular. There was none!
That was pretty much why it never seemed to bother him when he was standing on his rear knuckles.
I never noticed him in physical pain but he was an outside dog and seemed lost once he couldn't handle even a couple of stairs anymore. he just seemed stressed with his limitations.
I didn't let him suffer through that for long.
Hi Kate, I would contact Dr. Joan Coates at Mizzou's vet school. She's a neurologist and one of the top researchers in the country into DM. Let me know if you need any details. Degenerative myelopathy is awful and I've seen several dogs with it, including working GSDs. Now that we have a genetic test for it, I hope more GSD breeders test for it.
I know this sounds silly, but are you sure it is DM? I see so many people on message boards saying their dog was diagnosed with DM, but often it is just from a vet's observation rather than going through actual testing. One of my dogs had the symptoms of DM and when I brought her to a neurologist and had an MRI done, it was actually degenerating discs that were causing her problem, not DM. The neurologist told me that very few dogs that people think have DM actually do. He said that DM moves very quickly and the dogs die within a few months. Dogs with other problems like degenerating discs will live much longer. The treatments for DM and other problems are very different, so it is important that the proper testing is done to make sure what the dog has. As Bob said, dogs with DM don't feel pain, but dogs with other issues will, so you need to know what you are dealing with so the dog will not suffer unnecessarily.
Not silly at all.

I had a GSD who was diagnosed with DM at 9 years old, he got around OK, wobbly especially around corners, got progressively worse until he had to be put down at 11 years old when he could no longer get up. My next GSD, when he was around 8 yrs old, my regular vet (same one) thought it was once again DM, but suggested I go to Neurosurgeon for follow up 2nd opinion. Glad I did, the dog had some broken discs, which produces many of the same symptoms as DM. The dog was surgically fixed and afterwards was about as good as new.

For all we know, the GSD that was diagnosed with DM at 9, might not have had it at all. Also I am going by memory regarding how old the dogs were, so those are rough estimates.
Jeanne, it is not a silly question. I know that we can not have a 100% diagnosis without extensive testing, but all her symptoms, the timeline of the onset and progression point directly to DM. She also appears to have no pain with the loss of control. I am leary to subject her to a lot of stressful testing as I have read that stress can hasten the progression.

Maren, my vet is going to contact the U for me and get let me know what they suggest.

Right now she can still walk fairly well and on good days can still run some, but I can see the deterioration over the last few weeks.
One low stress way to see is to do a simple cheek swab collection that you send in to the vet school. Both my Malinois submitted blood for the research project when they were getting the background samples from other related breeds (both are negative), but the cheek swab is even easier and less invasive than even blood collection.
Jeanne, it is not a silly question. I know that we can not have a 100% diagnosis without extensive testing, but all her symptoms, the timeline of the onset and progression point directly to DM. She also appears to have no pain with the loss of control. I am leary to subject her to a lot of stressful testing as I have read that stress can hasten the progression.

I'm very sorry that the symptoms are pointing to actual DM. I will preface this by saying I don't think much of the person that runs the site, but here is one where you will find loads of DM info and support: http://www.mzjf.com/main.htm
My 10.5y female GSD was just diagnosed with Degenerataive Myelopathy. I have been reading quite a bit on it, but most of what's out there is the same basic medical information. What I can't find is personal experiences. If you have dealt with this, what is the progression of the disease, time frame, what helps and what doesn't etc. I would appreciate any in put. I am much more concerned with quality, not quantity of time right now.
One of my best friends had his K9 diagnosed with DM and it was very fast . Never saw a GSD hit harder then that dog . We thought maybe it was an injury due to that until they found the real cause . He was about 6 or 7 . Sorry to hear about your dog . Good luck . If those diets help I hope you update us . It would be good to know .
My vet knows Dr. Coats and spoke with her this morning. From speaking to her they are pretty sure this is what Anna has. However we are going to do the test. If she has the gene for DM, it will just confirm our thoughts, if she is clear, I will be heading to UMC for a full evaluation.

Thanks for the web site, I have seen her stuff around. Neither my vet nor Dr. Coates think much about the vitamin regiment, but exercise is a definite. Would be nice if it wasn't 7 degrees outside
Kate:

Google Dr. R. M. Clemmons. I think the Jack Flash site may have his information. Its been years since I've looked at this. Have met several people who extended mobility with a homemade diet and the Clemmons routine and I used it with a dog with disc issues. One person I know wrapped the hocks which gave the dog awareness. Many western based vets/physicians don't believe in vitamin regimens but that is slowly but surely changing in people and dogs. Europe is waayyyyy ahead of the game.

Terrasita
Hi ..sorry about your dog. It's a bitch of a diagnosis . My dog was diagnosed at 9.....with the test. I started aggressive treatment that included gold bead implants. The beads are put along the accupuncture points and constantly stimulate the points. He is something of a miracle...coming up on his 14th birthday and up until two months ago was still mobile. He has been on raw diet since 8 weeks, got all the supplements and regular chiro and accupuncture. The other best therapy I found was warm water therapy pool. He goes weekly and is markedly better after a swim/massage . He has had a great quality of life post diagnosis, sadly thats coming to and end shortly.
Thanks for the responses. Blood has been sent to UMC for the DNA test, just waiting for the results.
My female, 16 year old, 55 pound, shepherd hound mix was confirmed with DM. I just put her down. Sherah and I were extremely active her entire life, for years and years we hiked or walked trails for at least 3-7 miles each and every day so she was in pristine physical condition even at 16 years old. She literally never had a single medical illness or issue aside from a broken leg at 7 years old and then the DM at 16. Exercise is crucial to maintaining a DM dog’s mobility as long as possible so we still walked at least 2 miles a day throughout the first few months after her DM diagnosis. It did progressively take her longer on each walk but we broke it into chunks, took lots of breaks and only did what she was happy and eager to do.
The first sign that I noticed was when Sherah started scuffing her middle 2 toenails on both rear feet in September of 2022, I took her for a nail trim because I thought they were maybe just a little too long. Looking back, the toenails on the rear feet were not wearing evenly at all so that was a subtle sign. I also noticed that she had quit “hiking” to pee when on walks (she’s an alpha girl so she had always pee’d like a boy) and she started squatting to pee instead.
Then all of the sudden one day, about 1 month later in November 2022, she could no longer walk across hardwood/laminate/tile floors without her feet slipping out from under her (many times falling into a side split), I thought she was just showing some arthritis or other senior dog signs. She did not have any pain. She could walk pretty normally outside on the grass but I started avoiding pavement or any other rough surface with her because I didn’t want her to hurt her back feet. I covered every inch of the floors in the house with utility rugs to help her with traction and she seemed to be able to walk ok for a bit after that, again at that point I just thought it was just her getting older - after all she was 16 years old at this point.
Then in mid December 2022 she started standing with her hind legs crossed and didn’t seem to realize it at all. That was obviously a more serious sign so I took her to the vet. She was also walking with a slightly wobbly gait at that point and stumbling some on her walks. We were still walking about 2 miles a day total, spread over multiple walks throughout the day. At the vet we took a battery of tests and had an MRI. The MRI and every other test showed no issues with her at all, perfect condition physically (not even the arthritis that I had mistakenly assumed she was starting to experience), so we then did genetic testing and she tested positive for the genetic predisposition (and let me remind you she is not a purebred, she is a shepherd hound mix). That’s how she received an actual true DM diagnosis.
By the end of December 2022 I had to install a ramp over the 3 steps to get outside so that she could still walk in and out by herself without falling. She also started knuckling her rear feet.
By mid to late February 2023 she was having real trouble getting up from a lying or sitting position but once up she could still get around decently enough, just wobbly and stumbling. She still never had any pain and was a very happy girl. However, when she squatted to poop or pee she would fall on her butt about every other time she when to the bathroom because she could no longer hold herself up and that absolutely mortified her. I was able to help hold her up by the hips to steady her while she did her business but she was definitely unhappy about that situation. I purchased a special harness that had pelvic straps and a handle above her hips to try to help her move around but she was a pretty rural country dog and while she did love her cuddle time with me, she definitely wasnt used to being “manhandled” and so she refused to wear the harness (a wheelchair was definitely out of the question because of that).
By mid March 2023 her rear end would sink immediately to the floor when she stopped to drink or eat from her elevated water and food bowls, kind of like pressing the foot lever of a barber chair to make it go down in height - a pretty quick sink down but not a ”thunk” or a slam. She was extremely uncoordinated walking and tripped a lot (and fell over sometimes) but never stopped being alert, happy and had a great appetite.
By mid April 2023 she really starting to slow down, walks became shorter and shorter and we took lots of long breaks, and she was very rarely able to get up off the ground without assistance. She also experienced random rear leg jerking and kicking when just laying down. To give a specific timeline to how fast things start to progress: one weekend she was able to walk 1 mile round trip (half mile out and half mile back) on a sandy beach over about 3 hours - LOTS of stumbling and even more stops to rest for about 10-30 minutes at a time, but she was not in any pain and was really enjoying herself. Exactly 2 weeks later to the day, she only made it about 300 yards at the same location. So it starts to snowball very quickly towards the moderate stages. Because of this rapid progression I decided to have her euthanized by a mobile vet at home about 2 weeks after that, which was just a couple days ago.
Towards the end she because upset and frustrated with her lack of coordination and limited mobility. She was too large to carry around everywhere (not that she would have let anyone carry her anyways) and was not the kind of dog whose quality of life would be improved by harnesses, slings and wheelchairs. She had also started not sleeping through the night, whining, uncomfortable and also quit lying in her beds instead choosing to just lay on the rugs on the floor. To keep her with me any longer would have selfishly been for me, not for her, and that is 100% the wrong thing to do. It was so devastatingly hard to put her down, words cannot express it. And not just because of how incredibly much I loved her (she was literally my entire world, no husband or kids) but so so difficult because DM dogs stay alert and engaged up to the end. It’s awful to say but it is so much easier to put a dog down who is sick and in pain. DM dogs do not have any pain but they also do not understand what is happening to them and at some point it WILL become frustrating and depressing and scary to every DM dog, no matter what their disposition is. The time to euthanize a DM dog is different for everyone because all dogs are different, a dog who will accept a wheelchair will obviously be happier longer and can wait for euthanasia longer than a dog who refuses that kind of assistance. Also a dog who is in great physical condition and maintains their exercise throughout the DM (to the best of their comfort and ability) will be able to stay happy longer than a dog who just enjoys laying around and doesn’t exercise as much.
I hope that timeline helps someone else whose baby is experiencing this awful condition, I was not able to find many specific timeline examples online so I wanted to post my experience for others to read. I will also add that I went back and watched old videos of her to look for any subtle signs that I must have missed and a one thing was that in about April-May of 2022 the videos show she was not putting her tail upwards anymore. The highest she was lifting it when walking or barking at things was straight out horizontal. I never noticed it at the time because she was so active. So if you count the lack of tail movement in May 2022 as the first sign, everything I described happened from May 2022 to May 2023. I am too heartbroken to describe but I would rather have put my baby down a little too early than even one day too late. The time to euthanize is not when it becomes a sudden crisis situation or they have been suffering or become depressed. This is the one thing we can do for them, to make sure they pass away happy, peaceful and without fear and anxiety. I would gladly do it all over again for my precious loving wild little cuddle bug.
RIP my sweet Sherah, you will always be my scrumptious dumpling and my life is forever better because you were in it.
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